Missing Pieces

Friday, June 1, 2007

He was sooo brave today......

Took Hayden back to Riley Hospital to Dr. Boaz to have his stiches out from his brain surgery on May 17th. He was very brave, and didn't even really cry till the last 2 on the very bottom. Mark and I held him down, and another nurse held his head, while the other one took them out, he didn't even try to kick me LOL. Dr. Boaz said the tumor was about the size of a 50 cent piece and was buried very deep in his brain. He also said in all his years (maybe 20+) he has never had a kid with Lhermitte-Duclos Disease. Hayden's tumor was a Dysplastic gangliocytoma of the cerebellum, which is extremely rare. They are sending Hayden's medical records over to the genetisist office. They will contact us next week for an appointment for the whole family, as we all have to be tested. He also said after our follow-up MRI in July, Hayden will need an MRI every 6 months for a couple years and then 1 each year etc.
Went to Wal-mart for patio blocks & river pebbles to go around the pool. We had such a mud mess last year, I'm hoping this will help.
Wanda is still a guest, her slum-lord is slowly, making progress on her bathroom. I'm sure she will be glad when her and Gizmo the wonder dog can go home. Well I'm toast, off to bed......

2 comments:

EquineSpirit said...

Wow! What a brave little boy! ((HUGS!!)) and I'm glad the removal of his stitches went well.

Donna said...

Thank you so much, yes I think it was harder on Mommy and Daddy then Hayden.